Leukemia & Lymphoma Society
3 Landmark Square
Suite 330
Stamford CT 06901
Contact Information
Address 3 Landmark Square
Suite 330
Stamford, CT 06901-
Telephone (203) 379-0445 x
Fax 860-249-7135
E-mail brandy.sinisi@lls.org
Web and Social Media

Mission
LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
At A Glance
Year of Incorporation 1949
Former Names
Leukemia Society of America
The Leukemia & Lymphoma Society Connecticut Chapter
Organization's type of tax exempt status Public Supported Charity
Leadership
CEO/Executive Director Mr. Dennis Chillemi
Board Chair Mrs. Ann Bryan
Board Chair Company Affiliation None
Financial Summary
 
Projected Revenue $5,773,665.00
Projected Expenses $2,460,484.00
Statements
Mission LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
Background The Leukemia & Lymphoma Society began in 1949 as the Devillier's Society in memory of one family's loss of their teenage son.  The Leukemia & Lymphoma Society® (LLS), headquartered in White Plains, NY, with chapters across the United States and Canada, is the world's largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services. Since its founding in 1949, LLS has invested over $1 billion in research specifically targeting leukemia, lymphoma and myeloma. 
Impact

LLS is the world's largest voluntary health agency dedicated to blood cancer. LLS funds lifesaving blood cancer research around the world and provides free information and support services.

Our Key Priorities will ensure that: The Leukemia & Lymphoma Society helps blood cancer patients live better, longer lives.
 
It is estimated that there are over 18,000 blood cancer patients living in the state of Connecticut. In 2014, there were over 1,900 new blood cancer patients diagnosed in Connecticut. 

Needs

Newly diagnosed patients are under enormous amounts of emotional and financial stress. Many blood cancer patients are unable to work during their treatment and this financial hardship, partnered with the rising cost of healthcare, informs the need for LLS' Co-Pay Assistance Program. The Co-Pay Assistance Program is often how a patient first hears about LLS.

Patients also often feel they don’t have a support network that knows what they are going through; therefore, LLS’ programs like First Connection and patient support groups are extremely important.

There is also a need for LLS’ Welcome Back programs to help facilitate reentry back into schools, as school staff often don’t know how to explain to other school children what a leukemia patient has gone through. As stated in the Program Goals, a large focus of the Patient Services Department is to support a need for better outreach to the two identified underserved populations (Pediatrics & Hispanics). The Patient Services Department will continue to expand their outreach to these populations by continuing to meet with Community Based Organizations (CBOs), such as the Center For Eliminating Health Disparities Among Latinos (CEHDL) and The Hispanic Health Council. Within the past year, the CT Chapter is extremely proud to have initiated collaboration with these CBOs on a Hispanic Family Night and a weekly Spanish-speaking family support group for individuals impacted by cancer.

CEO Statement

LLS is the leader in support and educational programs in the area of blood cancers. The First Connection program is unique to LLS and is often the program that patients state they appreciate the most. The opportunity to have a casual conversation with someone who has gone through exactly what the patient is going through is critical. 


Board Chair Statement

In the current economic climate, the challenge that exists for the Connecticut Westchester Hudson Valley Chapter of the Leukemia & Lymphoma Society is our ability to continue raising funds that are used both to serve patients in our community and to support research that is critical to prolonging lives and ultimately to finding a cure for blood cancers.  We have addressed this challenge by targeting our events toward various segments of the public using both a geographic focus and a demographic focus.  We have also charged our Board of Trustees with recruiting more volunteers to participate at our events and to help raise awareness of the importance of our mission.  We have also made great progress in attracting Trustees to our Board that meet the demographic and geographic diversity of our constituents in Connecticut.  Our Board members, our volunteers and our staff, many of whom are blood cancer survivors, are energetic in working toward beating this disease and devote numerous hours organizing and attending events and meeting with families and those whose lives have been changed by the diagnosis of a blood cancer. Its what drives many of us to work tirelessly to raise funds in the race to find a cure.

Service Categories
Primary Organization Category Diseases Disorders & Medical Disciplines / Cancer
Secondary Organization Category Medical Research / Cancer Research
Areas Served
Throughout the United States
Ansonia
Bethany
Branford
Cheshire
Derby
East Haven
Guilford
Hamden
Lower Naugatuck Valley
Madison
Milford
New Haven
North Branford
North Haven
Orange
Oxford
Seymour
Shelton
Shoreline
State wide
Wallingford
West Haven
Woodbridge
National
International
Ansonia
Bethany
Branford
Cheshire
Derby
East Haven
Guilford
Hamden
Lower Naugatuck Valley
Madison
Milford
New Haven
North Branford
North Haven
Orange
Oxford
Seymour
Shelton
Shoreline
State wide
Wallingford
West Haven
Woodbridge
National
International
Other
The Leukemia & Lymphoma Society has chapters throughout the United States and Canada and funds research nationally and internationally.
 
The Connecticut Westchester Hudson Valley Chapter serves the entire state of CT and the Greater Hudson Valley, NY, with programs and services.
CEO/Executive Director/Board Comments
Also known as The Leukemia Society of America, LLS, Leukemia & Lymphoma Society of America.
Programs
Description

First Connection is a program that links newly diagnosed patients to a peer volunteer who has experienced a similar diagnosis. The CT Chapter seeks funding for local training of peer volunteers.  LLS would like to expand its volunteers to include underserved populations in the communities.

Population Served / /
Program is linked to organization’s mission and strategy Yes
Program is frequently assessed based on predetermined program goals Yes
Short Term SuccessHelpOrganizations describe near term achievement(s) or improvement(s) that will result from this program. This may represent immediate outcomes occurring as a result of the end of a session or service.
Enable patients and their loved ones to connect with a trained peer volunteer who has gone through a similar experience.
Long Term SuccessHelpOrganizations describe the ultimate change(s) that will result from this program. This may be far into the future and represent an ideal state.

The provide support and community resource information to others facing a similar diagnosis.

Program Success Monitored ByHelpOrganizations describe the tools used to measure or track program impact.
We monitor how many connections we make during the year here in CT and accross the country. Last year we had 148 First Connections made in CT and 6,000 nation wide.
Examples of Program SuccessHelpOrganization's site specific examples of changes in clients' behaviors or testimonies of client's changes to demonstrate program success.

Through First Connection Program, and other programs I help with I always encourage everyone, patients, family members, and even caregivers to go to these support group meetings. These meeting are a large pot of information. They are also a great way for family members to talk to other families. I have gotten great feedback about that. When I attend the group meetings, I take information from L.L.S with me, when I leave I take questions back to find answers.  As it is they are not an US and THEM programs, but WE as one. That is why these programs are so very important. I would not be where I am today if not for these programs. They all help people have a better life.

Bob S

Description

Family Support Groups provide mutual support and education for patients and family members.

Population Served People/Families of People with Cancer / /
Program is linked to organization’s mission and strategy Yes
Program is frequently assessed based on predetermined program goals Yes
Short Term SuccessHelpOrganizations describe near term achievement(s) or improvement(s) that will result from this program. This may represent immediate outcomes occurring as a result of the end of a session or service.

The CT Chapter provides 12 different support groups to patients and their families. Some groups are disease specific while others are general.

Long Term SuccessHelpOrganizations describe the ultimate change(s) that will result from this program. This may be far into the future and represent an ideal state.
We hope to add additional support programs as they are needed so we can provide the support for patients and their families.
 
Program Success Monitored ByHelpOrganizations describe the tools used to measure or track program impact.
Our Patient Services Managers review each support group with our volunteer facilitators to make sure the groups are a benefit to each person attending and patients and families are getting the resources they need.  
Examples of Program SuccessHelpOrganization's site specific examples of changes in clients' behaviors or testimonies of client's changes to demonstrate program success.

I will be forever grateful for having 2 ongoing support groups to attend while I continue my fight against this disease. I continue to attend them in an attempt to give back and assist others as they begin their journeys. They give me a purpose and inspire me to continue to hang in there in the fight to cure this and other cancers in our lifetime.
Most sincerely,
Ginny B

Description

Our Co-Pay Assistance Program helps eligible patients with certain blood cancer diagnoses defray the cost of mounting insurance co-payments and insurance premiums.

Population Served People/Families of People with Cancer / /
Program is linked to organization’s mission and strategy Yes
Program is frequently assessed based on predetermined program goals Yes
Long Term SuccessHelpOrganizations describe the ultimate change(s) that will result from this program. This may be far into the future and represent an ideal state.
We hope to reach as many qualified patients as possible to help assist with their medical bills
Program Success Monitored ByHelpOrganizations describe the tools used to measure or track program impact.
The program is monitored by our home office and local ct staff.
 
Examples of Program SuccessHelpOrganization's site specific examples of changes in clients' behaviors or testimonies of client's changes to demonstrate program success.

"I don't know where we'd be without this program. Every little bit that we can get is a relief for us" -Steven & Charlotte

Description

The Leukemia & Lymphoma Society (LLS) sponsors a range of free telephone and web education programs, and local education programs of interest to patients and caregivers.

LLS also sponsors conferences and meetings each year for physicians, nurses, social workers, researchers and other healthcare professionals. Live and past versions of these events are provided free to the public as ongoing informational resources.

 

Population Served People/Families of People with Cancer / General/Unspecified /
Program is linked to organization’s mission and strategy Yes
Program is frequently assessed based on predetermined program goals Yes
Long Term SuccessHelpOrganizations describe the ultimate change(s) that will result from this program. This may be far into the future and represent an ideal state.
Chapters provide free education programs to help clarify treatment options and strengthen decision-making and coping skills for patients and their families.
Program Success Monitored ByHelpOrganizations describe the tools used to measure or track program impact.
Our Patient Services Managers and National Staff montior the attendence and location of each of the programs to determine where changes can be made.
Examples of Program SuccessHelpOrganization's site specific examples of changes in clients' behaviors or testimonies of client's changes to demonstrate program success.
Many patients and professionals have been able to obtain more information about specific blood cancer diagnoses, testing results and side effects from treatment.
CEO/Executive Director
Mr. Dennis Chillemi
Term Start Apr 2014
Email dennis.chillemi@lls.org
Experience


Staff
Number of Full Time Staff 17
Number of Part Time Staff 3
Number of Volunteers 1000
Staff Retention Rate 100%
Staff Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 19
Hispanic/Latino 1
Native American/American Indian 0
Other 0 0
Staff Demographics - Gender
Male 3
Female 17
Unspecified 0
Former CEOs and Terms
NameTerm
Ms. Jeanne Montano -
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Annually
Senior Management Formal Evaluation N/A
Senior Management Formal Evaluation Frequency Annually
Non Management Formal Evaluation Yes
Non Management Formal Evaluation Frequency Annually
Board Chair
Mrs. Ann Bryan
Company Affiliation None
Term July 2013 to June 2015
Email annlbryan860@gmail.com
Board of Directors
NameAffiliation
Mr. David Bourgoin Dell
Mr. Kevin Cameron Consulting
Mr. Marc Diagonale JP Morgan
Ms. Nina Kadan-Lottick MDYale University School of Medicine
Ms. Jennifer Latasa Strategic Value Partners, LLC
Mr. Sean Mehner CT Information Security
Mr. Alfred Netter
Mrs. Patrice Notarfrancesco Whitneyville Food Center
Mr. Martin Rauch Marty Rauch Real Estate
Mr. Henry Tessier Tessier Associates
Ms. Deremius Williams Antham Blue Cross.Blue Shield
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 29
Hispanic/Latino 0
Native American/American Indian 0
Other 0 1
Board Demographics - Gender
Male 24
Female 7
Governance
Board Term Lengths 3
Board Term Limits 2
Written Board Selection Criteria Yes
Written Conflict of Interest Policy Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Board Co-Chair
Mr. Alfred Netter
Term July 2014 to June 2016
Email alfnetter@aol.com
Standing Committees
Advisory Board / Advisory Council
Board Development / Board Orientation
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
 
 
Financials
Fiscal Year Start July 01 2014
Fiscal Year End June 30 2015
Projected Revenue $5,773,665.00
Projected Expenses $2,460,484.00
Detailed Financials
Prior Three Years Expense Allocations Chart
Fiscal Year201120102009
Program Expense$2,012,896$1,630,646$750,524
Administration Expense$219,934$203,929$173,531
Fundraising Expense$269,671$248,187$215,179
Payments to Affiliates----$991,799
Total Revenue/Total Expenses0.991.011.02
Program Expense/Total Expenses80%78%35%
Fundraising Expense/Contributed Revenue11%12%10%
Prior Three Years Assets and Liabilities Chart
Fiscal Year201120102009
Total Assets$62,616$71,926$72,558
Current Assets$30,668$34,118$0
Long-Term Liabilities----$0
Current Liabilities$106,253$87,749$99,439
Total Net Assets($43,637)($15,823)($26,880)
Prior Three Years Top Three Funding Sources
Fiscal Year201120102009
Top Funding Source & Dollar AmountCommunity Health Charities of New England $94,399Team in Training $959,535Team in Training $890,407
Second Highest Funding Source & Dollar AmountWeb MD $25,000Light the Night $529,977Light the Night $498,643
Third Highest Funding Source & Dollar AmountTap Cancer Out $22,658Man & Woman of the Year $338,050School and Youth $176,006
Solvency
Short Term Solvency
Fiscal Year201120102009
Current Ratio: Current Assets/Current Liabilities0.290.390.00
Long Term Solvency
Fiscal Year201120102009
Long-Term Liabilities/Total Assets0%0%0%
Capitial Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
Comments
Foundation Staff Comments

This profile, including the financial summaries prepared and submitted by the organization based on its own independent and/or internal audit processes and regulatory submissions, has been read by the Foundation. Financial information is inputted by Foundation staff directly from the organization’s IRS Form 990, audited financial statements or other financial documents approved by the nonprofit’s board. The Foundation has not audited the organization’s financial statements or tax filings, and makes no representations or warranties thereon. The Community Foundation is continuing to receive information submitted by the organization and may periodically update the organization’s profile to reflect the most current financial and other information available. The organization has completed the fields required by The Community Foundation and updated their profile in the last year. To see if the organization has received a competitive grant from The Community Foundation in the last five years, please go to the General Information Tab of the profile.

 

Address 3 Landmark Square
Suite 330
Stamford, CT 06901
Primary Phone 203 379-0445
Contact Email brandy.sinisi@lls.org
CEO/Executive Director Mr. Dennis Chillemi
Board Chair Mrs. Ann Bryan
Board Chair Company Affiliation None

 

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