The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
LLS exists to find cures and ensure access to treatments for blood cancer patients. We are the voice for all blood cancer patients and we work to ensure access to treatments for all blood cancer patients.
LLS is the world's largest voluntary health agency dedicated to blood cancer. LLS funds lifesaving blood cancer research around the world and provides free information and support services.
Newly diagnosed patients are under enormous amounts of emotional and financial stress. Many blood cancer patients are unable to work during their treatment and this financial hardship, partnered with the rising cost of healthcare, informs the need for LLS' Co-Pay Assistance Program. The Co-Pay Assistance Program is often how a patient first hears about LLS.
There is also a need for LLS’ Welcome Back programs to help facilitate reentry back into schools, as school staff often don’t know how to explain to other school children what a leukemia patient has gone through.
LLS is the leader in support and educational programs in the area of blood cancers. The First Connection program is unique to LLS and is often the program that patients state they appreciate the most. The opportunity to have a casual conversation with someone who has gone through exactly what the patient is going through is critical.
In the current economic climate, the challenge that exists for the Connecticut Westchester Hudson Valley Chapter of the Leukemia & Lymphoma Society is our ability to continue raising funds that are used both to serve patients in our community and to support research that is critical to prolonging lives and ultimately to finding a cure for blood cancers. We have addressed this challenge by targeting our events toward various segments of the public using both a geographic focus and a demographic focus. We have also charged our Board of Trustees with recruiting more volunteers to participate at our events and to help raise awareness of the importance of our mission. We have also made great progress in attracting Trustees to our Board that meet the demographic and geographic diversity of our constituents in the Connecticut and Westchester/Hudson Valley Region, NY. Our Board members, our volunteers and our staff, many of whom are blood cancer survivors, are energetic in working toward beating this disease and devote numerous hours organizing and attending events and meeting with families and those whose lives have been changed by the diagnosis of a blood cancer. Its what drives many of us to work tirelessly to raise funds in the race to find a cure.
First Connection is a program that links newly diagnosed patients to a peer volunteer who has experienced a similar diagnosis. The CT Chapter seeks funding for local training of peer volunteers. LLS would like to expand its volunteers to include underserved populations in the communities.
The provide support and community resource information to others facing a similar diagnosis.
Through First Connection Program, and other programs I help with I always encourage everyone, patients, family members, and even caregivers to go to these support group meetings. These meeting are a large pot of information. They are also a great way for family members to talk to other families. I have gotten great feedback about that. When I attend the group meetings, I take information from L.L.S with me, when I leave I take questions back to find answers. As it is they are not an US and THEM programs, but WE as one. That is why these programs are so very important. I would not be where I am today if not for these programs. They all help people have a better life.
Family Support Groups provide mutual support and education for patients and family members.
The CT Chapter provides 12 different support groups to patients and their families. Some groups are disease specific while others are general.
I will be forever grateful for having 2 ongoing support groups to attend while I continue my fight against this disease. I continue to attend them in an attempt to give back and assist others as they begin their journeys. They give me a purpose and inspire me to continue to hang in there in the fight to cure this and other cancers in our lifetime.Most sincerely,Ginny B
Our Co-Pay Assistance Program helps eligible patients with certain blood cancer diagnoses defray the cost of mounting insurance co-payments and insurance premiums.
Last fiscal year,123 Connecticut patients received $285,962 in co-pay assistance!
"I don't know where we'd be without this program. Every little bit that we can get is a relief for us" -Steven & Charlotte
The Leukemia & Lymphoma Society (LLS) sponsors a range of free telephone and web education programs, and local education programs of interest to patients and caregivers.
LLS also sponsors conferences and meetings each year for physicians, nurses, social workers, researchers and other healthcare professionals. Live and past versions of these events are provided free to the public as ongoing informational resources.
Indirect Public Support HelpIndirect public support represents revenue received through solicitation campaigns. This includes funding United Way and other federated fundraising organizations, but does not include donor designated contributions.
Earned Revenue HelpEarned revenue represents income generated in direct exchange for a product or service.Earned income includes income from government contracts.
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