Circle of Care for Families with Cancer
144 Danbury Road
Wilton CT 06897
Contact Information
Address 144 Danbury Road
Wilton, CT 06897-
Telephone (203) 663-6893 x
Fax 203-762-5945
E-mail info@thecircleofcare.org
Web and Social Media
Directly impacting children with cancer and their families
Mission
Circle of Care for Families of Children with Cancer is a 501(c)(3), not-for-profit, volunteer-driven organization that supports children with cancer and their families during treatment. Our mission is to provide practical, emotional and financial assistance to Connecticut families of children in treatment for cancer through programs and services that meet the unique and challenging needs of pediatric cancer treatment.   Until no parent has to hear the words"your child has cancer," we''ll be here no matter where the journey leads.
A Great OpportunityHelpThe nonprofit has used this field to provide information about a special campaign, project or event that they are raising funds for now.
Duende Gala September 15th, 2018 at l'escale, Greenwich, CT Dwen.de/: Passion. Courage. Inspiration. Our theme for the evening comes from an ancient Spanish term that defies translation. Duende, or “to have duende,” is an expression that refers to an unconscious and powerful inner force that harnesses the strength of one’s spirit. Those who have duende possess tremendous soul and magnetism that is both provocative and inspirational. The brave children and families we serve, while facing their greatest challenge, all have a certain duende. We invite you to celebrate their boundless spirit on this special night.The Gala will be a festive evening of dinner, live music and entertainment to celebrate the friends, volunteers and generous donors who support our Circle of Care families. For the past 14 years Circle of Care has helped nearly 2,800 children and families in Connecticut cope with the varied challenges associated with the diagnosis and treatment of pediatric cancer. Since inception, our programs and services have grown and become integral to the experience of families of children with cancer. Whether it is our Bag of Love, filled with the essential items and resources that are needed as newly diagnosed families transition to hospital life, an Art from the Heart children’s room makeover, a week at Circle The Sun Sibling Camp, or much needed financial assistance from our Lifeline Emergency Fund, Circle of Care has served as a guide and source of inspiration and support, from the day of a child’s diagnosis, throughout the challenging journey, and beyond. Our “Duende” Gala is a fundraising event focused on recognizing those who have helped us reach our current goal while welcoming those whose commitment will ensure that we have the funds and volunteers to take Circle of Care into the future, with even greater support and resources to offer families battling pediatric cancer. For tickets and sponsorship opportunities please visit thecircleofcare.org/gala
A Great Opportunity Ending Date Sept 15 2018
At A Glance
Year of Incorporation 2008
Organization's type of tax exempt status Public Supported Charity
Organization received a competitive grant from the community foundation in the past five years No
Leadership
CEO/Executive Director Gina Longo
Board Chair Elizabeth Salguero
Board Chair Company Affiliation No Affiliation
Financial Summary
Revenue vs Expenses Bar Graph - All Years
Statements
Mission Circle of Care for Families of Children with Cancer is a 501(c)(3), not-for-profit, volunteer-driven organization that supports children with cancer and their families during treatment. Our mission is to provide practical, emotional and financial assistance to Connecticut families of children in treatment for cancer through programs and services that meet the unique and challenging needs of pediatric cancer treatment.   Until no parent has to hear the words"your child has cancer," we''ll be here no matter where the journey leads.
Background Our unique combination of programs address the non-medical needs because we understand the benefits and impact of immediate support in getting through this journey, which can last several years. Our innovative culture is born out of the fact that a child facing a life-threatening illness cannot wait for a bureaucracy to respond – the need demands reliability, consistency and a presence in the market; one has to be big enough to provide genuine relief, yet small enough to deliver it personally and effectively. Thus our mission is to provide practical, financial and emotional support, directly to children with cancer and their families, at every stage of treatment: from diagnosis to recovery. While we look forward to the day when a cure is found and our services are no longer needed, we do not provide funding for research or cures as it takes on average $1 billion and 12 years to bring a cure to market. Our experience tells us that our impact is greatest, and the need is most present, in providing direct support to children and families during treatment. Circle of Care was founded in 2003 by three entrepreneurial women whose children battled cancer. They built the program steadily over the years, earning the trust and respect of the medical community, corporations, foundations and individual donors. They have formed enduring partnerships with Yale New Haven Hospital, Connecticut Children’s Medical Center (the only pediatric cancer treatment centers in the state) and Maria Fareri Children’s Hospital. We also support children from Connecticut who are treated anywhere in the country, including Dana Farber in Boston and Sloan Kettering in New York. Over the last ten years, we have reached over 2,800 families, delivering 2450 Bags Of Love, transforming 115 rooms through Art from the Heart, providing over 16,000 hours of volunteer respite hours and giving over $1,250,000 in direct financial support. Circle of Care, which has earned GuideStar Gold certification, prides itself on running one of the most efficient and effective pediatric cancer organizations in Connecticut.
Impact

·  We surveyed our program recipients last summer, and 95% reported that we had the highest level of impact on them. 

* Last year we had our single best year of fundraising in our history, growing our donor pool by over 50%, and the funds raised by nearly 100% over two years. 

·  We exceeded our fundraising goals, and consistent with our long-term strategic plan, we were able to bring our first employee on board. 

·  Every interaction we have with a child or family in which we are able to provide even a modicum of relief is our most significant accomplishment. We operate with very little overhead, with an abundance of volunteers, because we are about forming a circle around these families and providing the support they need during the most difficult experience of their life. 

An investment in Circle of Care not only helps children with cancer and their families, but it also impacts the community.  An analysis of our program revealed that for every $1 given to Circle of Care, $5.66 is returned to the community, and more specifically for every $1 given to the Emergency Fund, the return on investment is $3.21.
 
We seek to directly support 150-200 families in 2018 and enlist the support of 300 community volunteers. Sadly, the incidence rates are increasing and last year the demand for our help was up 30%, so there is significant pressure on us to continue to support the children with cancer we serve here in our community. In addition, while there is approximately $450,000 being provided in the market for Emergency Financial Support, our analysis reveals that there is a need of approximately $1 million. 
 
Through our Art from the Heart room makeover program, we will inspire community service among high school and college students by enlisting their support to conduct room makeovers for approximately 20 children with cancer. 
 
We expect to support 150-175 of the approximately 525 children in treatment in CT. 
 
Needs
50% of the families we support live below the federal poverty level. So for them, the choice between caring for a very sick child and providing for their family is very real. However, 70% of families, regardless of income, experience a financial crisis during treatment. Last year, the demand for emergency financial support increased by over 30%. Our most pressing need is to raise $2 million to meet the basic needs of the population we serve. 
 
The need for emergency financial support is significant, and crippling many during a time of emotional crisis. According to the National Cancer Institute, the incidence of invasive pediatric cancers has increased 29% over the past 20 years. Because of advances in treatment, more than 80% of children now survive 5 years or more. In addition, mortality rates for childhood cancer have declined by 66% over the past four decades. The net result is that more children are undergoing longer and more expensive treatments, with families struggling to make ends meet. Although there has been a national focus on health care, childhood cancer costs continue to grow exponentially. As medical debt spirals, the line between solvency and bankruptcy narrows, with over 30% of families declaring personal bankruptcy. A study by the Kaiser Foundation found that the average out-of-pocket expense for a child with cancer is $34,558 per family and the average cost of treatment is approximately $500,000 per child, with 28% of families unable to afford treatment. Based on the number of children in treatment in Connecticut, at least $1.7 million is needed to alleviate the financial crisis experienced by these families.
CEO Statement
“I know your child has cancer and you are struggling to find support during treatment and you need help, now, but we just don’t have the resources. We can''t help you.” I am humbled and honored to serve as the Executive Director of Circle of Care, and I am absolutely determined that a local family whose child is in treatment for cancer will never have to hear those words. We are the last resort first responder -- we are there to provide support when nobody else is around. Thanks to our Board and our founders, Liz and Dawn, we have an exceptional program in place to support children with cancer and their families in Connecticut. While our culture of innovation and excellence dictates that we will always look to improve, the reality is I am fortunate to be walking into an organization that is one of the most respected in its field, that has an unbelievably dedicated board and volunteer network, and a carefully prescribed program that addresses the many overwhelming needs our families face.

But we have one very pressing problem: the only thing standing in the way of us being able to close the cancer support gap and fully meet our families’ needs rests in our ability to continue to engage people like you, which is why we are so grateful for your continued support. You play a critical role in helping us close this gap.

I am fortunate in that I already know what my best day in this job will be – the day when we are able to meet all the needs of families facing a cancer diagnosis in their child. Until that day, we will work to close this gap by being a relentless advocate for our families, because I know what it’s like to watch someone you love battle cancer. I know what it’s like to struggle to care for someone and manage what is already a hectic life. I know that this journey can be really hard, and when it is, that’s when we are most needed. So when I look into the eyes of the children I am so fortunate to meet, I don’t see their disease, I see their dreams. I know we can’t change their path, but if we can bring a little light to that dream, we can truly form a circle of care. To those who might support us, know that we run an effective, efficient organization and your gifts will have a direct impact on children with cancer and their families. A $1 investment in Circle of Care returns $5.56 to the community, but it also transforms lives of children with cancer, right here in our community.  

 
Board Chair Statement
In 2003 we had a simple idea - to provide comfort and a network of caring parents to those whose children had recently been diagnosed. We founded Circle of Care to fill the gaps in support services available to families of children with cancer in Connecticut. Little did we know when we began that one program would turn into six in just the first 2 years. We have been blessed to work with the best doctors, nurses, child life specialists, and social workers to develop the critical programs that really make life easier for those families facing a cancer diagnosis in their child.
 
Circle of Care has one vision, one mission and one goal: to be there for the hundreds of children and families in CT facing cancer.  We are blessed by a cadre of dedicated volunteers; some work tirelessly throughout each year raising funds to support all of our programs while others give generously of their time fostering care and hope through our in-hospital visitation/respite program.
Service Categories
Primary Organization Category Human Services / Support NEC
Secondary Organization Category Health Care / Health Support
Areas Served
Local
State wide
Lower Naugatuck Valley
Shoreline
Ansonia
Bethany
Branford
Cheshire
Derby
East Haven
Guilford
Hamden
Madison
Milford
New Haven
North Branford
North Haven
Orange
Oxford
Seymour
Shelton
Wallingford
West Haven
Woodbridge
Other
Circle of Care''s programs are thoughtfully designed to fulfill a family''s emotional and financial needs throughout the long and difficult journey of a pediatric cancer diagnosis in Connecticut and southeastern NY. We offer programs to Yale-New Haven Hospital''s Smilow Cancer Center in New Haven, CT; CT Childrens'' Medical Center in Hartford, CT; and Maria Fareri Children''s  Hospital in Westchester, NY, and we also support children and families from Connecticut who are treated out of the area, including Dana Farber and Sloan Kettering.
Programs
Description Bags of Love provides each newly diagnosed family with a canvas bag filled with essentials for patient and caregiver during hospitalization. These include toiletries, a thermometer, prepaid phone cards, meal & parking vouchers, resource guide, a book and toy for each child, messages of support, and more.
Population Served / /
Description Art from the Heart transforms a cancer patient’s bedroom at home into a personal wonderland. The Dream Room is offered by lottery and all the work is done by volunteers. Our goal is to make over a sick child’s room into the room of his or her dreams through paint, fabric, creativity and boundless imagination.
Population Served / /
Description

Lifeline Emergency Fund is a financial assistance program aimed at alleviating some of the financial difficulties experienced by families when their children are undergoing treatment for cancer. With 70% of families facing a financial crisis during treatment, Circle of Care ensures that no parent has to choose between caring for a sick child and providing for their family. With other resources exhausted, families seek funds for basic essentials such as food, gas and housing (mortgage, rent and utility payments). Our program is valued, carefully prescribed and ready to scale, but because our funding is limited and we cannot yet meet the full demand in the market, we work closely with the hospitals to assess where the need is greatest. Working through the social worker, families submit a comprehensive application; following its review and acceptance, Circle of Care makes direct payments to creditors and tracks distribution of funds. The current maximum annual allotment is $2,000 per family.

Population Served / /
Description Circle of Care Hospital Volunteers provide respite care on the pediatric oncology in-patient units. They are available to play/read with the children giving caretakers a needed break or make coffee/snack runs for those who can’t leave the floor.
Population Served Children and Youth (infants - 19 years.) / None / None
Description This book is a compilation of the many wonderful resources available on the Internet, in print and video for families with cancer. Each resource has been carefully researched and reviewed.
Population Served Children and Youth (infants - 19 years.) / None / None
Description Lifeline is a support network that connects survivor families with newly diagnosed ones.
Population Served / /
Description

Circle the Sun,  a  camp for siblings is a new program offered in partnership with Camp Rising Sun.  This program  provides a much-needed resource for siblings of children with cancer as there is only one other sibling camp in the state of CT. By offering this camp we provide respite to parents, and something special for the siblings who both make up the critical care team for the child in treatment. In our second  year we had 51 campers registered, next year we expect to reach capacity at 60 campers which represents about 40 families of children with cancer.

Population Served Children Only (5 - 14 years) / Families / Other Health/Disability
Program is linked to organization’s mission and strategy Yes
Program is frequently assessed based on predetermined program goals Yes
CEO/Executive Director
Gina Longo
Term Start Jan 2018
Email Gina@thecircleofcare.org
Staff
Number of Full Time Staff 1
Number of Part Time Staff 0
Number of Volunteers 200
Number of Contract Staff 2
Staff Retention Rate 100%
Staff Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 3
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Staff Demographics - Gender
Male 0
Female 3
Unspecified 0
Former CEOs and Terms
NameTerm
Jeff Kimball Jan 2015 - Jan 2018
Formal Evaluations
CEO Formal Evaluation Yes
CEO/Executive Formal Evaluation Frequency Semi-Annually
Senior Management Formal Evaluation N/A
Senior Management Formal Evaluation Frequency N/A
Non Management Formal Evaluation N/A
Non Management Formal Evaluation Frequency N/A
Collaborations
We work closely with the medical community and others who support children with cancer, including Smilow Cancer Hospital at Yale New Haven Children's Hospital and Connecticut Children's Medical Center. We also work closely with Camp Rising Sun, Camp Sunshine, Make a Wish of CT, the Leukemia and Lymphoma Society, among others. 
 
Awards
Award/RecognitionOrganizationYear
Light a Fire AwardMoffley Media2013
Make a Difference - Taste a Difference AwardHood Simply Smart Milk 2011
Board Chair
Elizabeth Salguero
Company Affiliation No Affiliation
Term Jan 2003 to Dec 2018
Board of Directors
NameAffiliation
Missy Dorsey
Ray Eckert Wilton RE
Rick Fingeret
Bob Hinckley
Susan Kobylinski
Dawn Ladenheim No Affiliation
Karen Morgenbesser
Zelie Pforzheimer
Jeffrey Salguero
Stacey Savas
Liz Vega
John Weidner Cornell Global
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 11
Hispanic/Latino 1
Native American/American Indian 0
Other 1 0
Board Demographics - Gender
Male 5
Female 7
Unspecified 1
Governance
Board Term Lengths 3
Board Term Limits 0
Written Board Selection Criteria Under Development
Written Conflict of Interest Policy Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 5%
Constituency Includes Client Representation No
Board Co-Chair
Dawn Ladenheim
Company Affiliation No Affiliation
Term Jan 2003 to Dec 2018
Standing Committees
Advisory Board / Advisory Council
Finance
Volunteer
Board Development / Board Orientation
Marketing
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Strategic Planning / Strategic Direction
Additional Board/s Members and Affiliations
NameAffiliation
Jeanne Marconi M.D.The Center for Advanced Pediatrics
Joseph McNamara M.D.Yale Smilow Cancer Center
Jennifer Moore M.D.The Center for Advanced Pediatrics
Lauren Riordan Ph.D.The Waverly Group
 
 
Financials
Fiscal Year Start Jan 01 2018
Fiscal Year End Dec 31 2018
Projected Revenue $596,600.00
Projected Expenses $596,319.00
Spending Policy N/A
Credit Line No
Reserve Fund Yes
Other Documents
Other Documents 3
NameYear
State Registration Certificate2017View
State Registration Certificate2015View
Detailed Financials
Prior Three Years Assets and Liabilities Chart
Fiscal Year201620152014
Total Assets$520,178$465,659$477,210
Current Assets$501,305$450,659$477,210
Long-Term Liabilities------
Current Liabilities$8,915$10,251$28,011
Total Net Assets$511,263$455,408$449,199
Prior Three Years Top Three Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountAmerican Savings Bank $20,000American Savings Bank $20,000American Savings Bank Foundation $15,000
Second Highest Funding Source & Dollar AmountMBIA $15,000MBIA $13,000MBIA $15,000
Third Highest Funding Source & Dollar AmountNew Canaan Community Foundation $12,500The Eder Family Foundation $20,000Nesi Family Foundation $10,000
Capitial Campaign
Currently in a Capital Campaign? No
Capital Campaign PurposeHelpCapital Campaigns are defined as a fundraising efforts over-and-above an organization's annual operating budget. Campaigns might include the purchase of land or a building, major renovations, and major equipment purchases. Endowment campaigns may also be included if the funds are legally restricted. To raise funds to cover the first 3 years expenses for our new office which will enable us to expand our family programming, increase volunteer opportunities and increase efficiency for our staff and board work. 
Goal $100,000.00
Dates Jan 2019 to Dec 2019
Capital Campaign Anticipated in Next 5 Years? Yes
Comments
CEO Comments We don't meet the threshold yet for an audit, but we can provide  3 years reviewed financial statements if needed. 
Foundation Staff Comments This profile, including the financial summaries prepared and submitted by the organization based on its own independent and/or internal audit processes and regulatory submissions, has been read by the Foundation. Some financial information from the organization’s IRS Form 990, audited financial statements or other financial documents approved has been inputted by Foundation staff. The Foundation has not audited the organization’s financial statements or tax filings, and makes no representations or warranties thereon. A more complete picture of the organization’s finances can be obtained by viewing the attached 990s and audited financials. To see if the organization has received a competitive grant from The Community Foundation in the last five years, please go to the General Information Tab of the profile.
Address 144 Danbury Road
Wilton, CT 06897
Primary Phone 203 663-6893
Contact Email info@thecircleofcare.org
CEO/Executive Director Gina Longo
Board Chair Elizabeth Salguero
Board Chair Company Affiliation No Affiliation

 

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